Hi again. It’s still Elyse here.
My mom is at an acute physical rehab facility called California Rehabilitation Institute.
She was at UCLA hospital from Friday, April 17th through Wednesday, April 22nd before moving over to CRI. She’s been in a lot of pain and has had a very difficult time moving her legs on her own, so the doctors felt she needed physical rehab before she could safely come home. They ran a myriad of tests and determined the pain is from the agressive treatment she’s had to fight the tumor that was in her pelvis. The doctors have told me that pelvic cancers are notoriously extremely painful and leave a lot of scar tissue as the tumor shrinks. They are positive this will resolve over time with strong pain management and physical therapy. That’s a lot easier said than done when you’re the patient in extreme pain.
There are bad days and better days. I speak to her everyday. It’s really horrible that I can’t see her. This has taken a huge mental and emotional toll on her, in addition to the physical toll. She’s such a strong, independent, in control person, that having to rely on others and give up so much control has been very, very difficult. My mom likes things her way and, unfortunately, things don’t always go your way in the hospital. If you know my momma, you know ;).
She called me this afternoon and was in better spirits than I’ve heard her all week. She had some physical therapy today and she said she was feeling, “pretty good.” Considering where we’ve been these last few weeks, I’ll take it.
The care she’s getting at CRI is the same as in the hospital at UCLA, but the focus here is on PT and OT. We are very hopeful that her leg pain can be managed and she can continue getting stronger with physical therapy. Typically, CRI requires a patient to agree to 3 hours of physical therapy a day, but with covid 19 they’ve relaxed their admissions in order to move people out of the hospital sooner. Usually with 3 hours of PT a day, patients leave in about 2 weeks. With the relaxed standards, they are giving as much OT and PT as the patient can tolerate. We’re praying she can tolerate a good amount each day and be back home in about 2 weeks. Only time will tell.
This has been a major setback. To say this past week and a half has been difficult would be the understatement of my life. This is not easy. She’s dealing with a lot of really difficult stuff right now, but she’s such a force. I pray we’re all home together soon.
I know it’s lonely for her without visitors, so if you’re able to comment here on the blog, send her an email, or a text, I know it will make it a little easier for her. She might not respond, but knowing people are thinking of her could really boost her mood. I have the beautiful cards you’ve sent since she’s been gone, and I will make sure she sees them.
If you would like to send flowers or cards directly to her during her stay, the address is:
California Rehabilition Institute
Attn: Victoria Condos (8th floor)
2070 Century Park East
Los Angeles, CA 90067
Most importantly, please keep my mom and our family in your thoughts. We thrive on your well wishes. It’s so comforting to me, and I know it helps my mom keep fighting when she sees your love. Thank you for all the love, prayers, healing energy, and positive vibes you’ve sent so far! Please keep sending them! She needs them!
Elyse
Sending much love and hope and strength to you all. Love and hugs.
We love your mom and are keeping her in our thoughts and prayers. Thank you for posting and letting us know how she is doing and what she needs. Sorry that she is going through this. ❤️🙏
SO SORRY TO HEAR WHAT YOU ARE HAVING TO GO THRU BUT STAY STRONG AND POSITIVE AS MUCH AS YOU CAN. TRYING TO SEND YOU AN EMAIL TO CHEER YOU UP BUT THINK I WILL HAVE TO CALL PRESTON ON HOW TO DO THAT.
PRAYERS AND POSITIVE THOUGHTS COMING YOUR WAY AND AS SOMEONE ELSE SAID LOVE & HUGS.
Vicki,
We think about you everyday. Stay strong.
With love,
Stuart and Nevena
Thank you so much Elyse for giving us an update on your mom!
We will continuously be praying for ALL of you during this difficult time and especially for the separation you are having to go through 🙁
Vicki,
YOUR courage, YOUR strength is a testament of YOUR willpower you have! Stay strong, stay positive and please know that you are LOVED by so many!
We are praying that your physical therapy will give some relief to this awful pain so you can be home with your family!
Lots of love,
Greg & Guylaine
Hey vic I’m so sorry you’re going through so much pain I don’t think I could handle it as well as you are just know that we are all behind you and praying for the best. Love you and hope you can get home soon. Dave
Hi Elyse,
I just saw this.
Thanks for the flowers info.
Like I said Im praying daily and know she’s going through soooooo soooooo much. Wow!!!!!!
Hopefully she is on the uphill swing now. Amen!!!!!
God Bless you and Wade and your brother. Not exactly easy times to go through this.
Love ❤️ Joanne
Vicki:
Mary and I send our very best wishes and healing thoughts to you and your family. It’s obvious from your daughter’s posts that you are getting a tremendous amount of love and support from your kids and from the rehab professionals. We will continue to keep you in our loving thoughts that you may emerge healthy and triumphant from your courageous fight.
Lots of love and healing vibes,
Jere and Mary Mendelsohn
PS: Mary is still a Director at City of Hope and is available for support and any additional questions you have or info you require: 626-757-9172.
Vicki
I know it’s a day early but Happy Birthday. I am praying that you have a Blessed Day.